Curse of living with disability

Curse of living with disability

HARARE - Shunned because of the physical deformities they were either born with or acquired later in life, people with disabilities are often forgotten and ridiculed.
Loreen Chikoto was born with dwarfism, a genetic defect that makes her smaller than the average person.
When she started dating, people found it odd and when she got pregnant the comments and taunts were even worse.
“Often, I would hear people saying ‘ndiani akashinga kurara nekamunhu aka, haanzwewo tsitsi here? (who was courageous enough to sleep with such a person, do they not have any mercy for her?). Unbeknown to them is that I am married and was simply doing what most married people do,” she said.
According to Section 22 of the Constitution, the State, all institutions and government agencies must recognise the rights of persons with disabilities and must afford them the respect and dignity they deserve.
Section 83 also mandates the State to ensure that people with disabilities realise their full mental and physical potential through provision of State funded education, access to medical treatment and protection from abuse.
In September 2013, Zimbabwe ratified the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD).
Among some of the provisions of the Convention is the right to access justice, freedom from exploitation violence and abuse and protecting the integrity of the person.
Recently, government through the ministries of Social Welfare, Justice, and Women Affairs held consultations to align the Disabled Persons Act to the Constitution.
The exercise was aimed at mainstreaming disability issues as an integral part of the relevant strategies of sustainable development.
During the outreach programmes, some of the persons with disabilities complained that they are judged when seeking medical treatment for sexually transmitted diseases(STIs).
They said they are frowned upon and asked how they contracted the STIs when they visit clinics or hospitals.
Others explained how children with disabilities are deprived of education and often end up dropping out of school.
“Some parents with physically challenged children hide them from society, deprive them of education and infringe on their rights to associate with others,” said one woman.
Senator Anna Shiri told the Daily News on Sunday that there was a serious need for extensive advocacy on the rights and needs of people with disabilities.
She said very few people know how to handle or approach people with disabilities, prompting society to shun or ignore them in key decision areas.
Shiri said issues to do with people with disabilities are no longer a welfare issue but a human rights concern as such people do not require handouts anymore but need to be economically empowered to take care of themselves.
The senator said employment issues are very important as people with disabilities are not seriously considered for employment regardless of their qualifications.
“There is very little awareness on issues concerning people with disabilities. People think they will be a burden when they employ them despite being able to perform the tasks. In Senate, there are only two people representing people living with disabilities while in the Lower House there is none.
“People with disabilities find it very hard to get jobs because of the attitude society has,” she said.
Shiri added that people with disabilities often face the challenge of being wrongly diagnosed because of poor communication between the patient and doctor or nurse.
She said there are no information pamphlets in braille which can be used by the visually impaired or sign language interpretation often leaving these people in the dark on health related matters.
“Many public facilities are not friendly to people living with disabilities. Hospitals, schools and even churches are not accessible to people with disabilities.
“Toilets meant for these people are not one size fits all. Just because it can fit a wheelchair does not mean it was done properly.
“Different disabilities require different adjustments hence the need for specialist architects to build proper structures that can accommodate all.”
“There is need to mainstream disabilities because the Sustainable Development Goals clearly state that no one should be left behind.
“All developmental concerns should include people with disabilities. In 2015, only one disabled person in the whole country benefitted from the revolving loan fund and that is deplorable,” she said.
Shiri said people with disabilities are being abused everyday but their cases are not reported because society does not respect them as human beings.
She said people with disabilities should be self-represented and not have others assume what challenges they face.
The senator, representing people living with disabilities, said only if the UNCRPD is domesticated will the rights of persons with disabilities be upheld and respected.
“The entire legal process is traumatising to a person with a disability. For example, reporting a case can be a task for someone using sign language because a police officer does not understand sign language and when it finally goes to court, interpreters are not readily available,” Shiri said.
She said the National Disability Board members were not part of the government consultation process making it flawed.
Executive director for Community Working Group Itai Rusike said it is unfortunate that people living with disabilities still continue to experience shame, stigma and discrimination.
Rusike said as people living with disabilities constitute 10 percent of the population, the resource allocation to the sector does not reflect their growing need to be fully supported.
He added that people with disabilities are also sexual beings like able bodied people and must have access to information and resources to make informed choices on their sexual and reproductive health.
“The Sexual and Reproductive Health Rights (SRHR) of persons with disabilities are often overlooked by the communities and service providers yet they have the same needs for SRHR services as everyone else.”
“People with disabilities actually have greater needs for SRHR education and care due to their vulnerability to abuse, yet the country has not done enough to popularise and translate policy documents including IEC materials into the relevant materials understood by people living with various forms of disabilities,” he said.
Rusike also said the training curriculum for health personnel needs to have a human rights approach for people living with disabilities and must also include basic training in sign language, braille and provision of disability-friendly facilities in all our health centres.

Helen Kadirire • 18 September 2016

Towards community centred health care

June 5, 2014 Musah Gwaunza

Health Centre Committees are a mechanism through which community participation can be effectively integrated to achieve a sustainable people-centred health system at the primary care level. In recent years there has been a shift from centralised management of government structures towards more devolved models that have seen community members being empowered to contribute to the development of their communities.

More recently, the community share ownership schemes have seen community members being active in decision-making in
line with resource allocation on development issues that affect them.

Although more still needs to be done, the trend has also shifted in development partners that have over the years been dictating projects in communities, without being sensitive to community needs and priorities.

One such community empowerment initiative is the Health Centre Committee (HCCs) introduced by Government to ensure that health facilities are sensitive to the needs of communities, including contribution by community members themselves to management of these facilities at primary level.

The Primary Health Care (PHC) provides the first point of contact between the community, village health workers and the
formal health delivery system, hence becoming the most important level in the health delivery system in any country.

Zimbabwe’s National Health Policy commits the Government to ensure that communities are empowered to take responsibility for their own health and well-being, and to participate actively in the management of their local health services.

The PHC approach that was adopted by the Government in 1980 seeks to build and depends on high level of ownership and
participation by the affected communities. HCCs are a mechanism through which community participation can be effectively integrated to achieve a sustainable people-centred health system at the primary care level.

They complement vital community level initiatives like community health workers, and mechanisms for public participation at all levels of the health system.

In Zimbabwe, HCCs were originally proposed by the
Ministry of Health and Child Welfare in the early 1980s to assist
communities to identify their priority health problems, plan how to
raise their own resources, organise and manage community contributions,
and tap available resources for community development.

The
Community Working Group on Health defines a Health Centre Committee as a
joint community–community health service structure at the primary care
level of the system covering the catchment area of that primary care
facility (usually a clinic). It usually covers a ward, but may be more
or less than a ward and constituting 11-15 people.

Although ward
health teams exist at local government level in both urban and rural
areas, the health centre committee exists to provide for participation
in the functioning of the health centre and the PHC activities in its
catchment area, clarifies the Community Working Group on Health.

Mr
Itai Rusike, Community Working Group on Health director, indicated that
about 80 percent of health centres in the country have constituted HCCs
although many only exist on paper.

He said: “Despite setting their roles and functions as early as the 1980s,
HCCs still do not yet have a statutory instrument that specifically
governs their roles and functions.

This is a gap in the formal
provisions on how communities should organise on health and PHC at
primary care (health centre) level. While PHC is not only an issue for
the health sector, and is thus taken up by more general local government
structures, it is necessary that mechanisms exist within the health
sector to align the health system to PHC and community issues, as well
as to link and give leadership input to these more general structures.”

The
Ministry of Health and Child Care 2009-2013 National Health Strategy
that has now been extended to 2015 recognised this gap and made specific
note of the importance of establishing health centre committees within
the health system.

The strategy identifies that “ . . . during the
next three years, communities, through health centre committees or
community health councils, will be actively involved in the
identification of health needs, setting priorities and managing and
mobilising local resources for health.”

In 2013, according to the
Community Working Group on Health, Health Centre Committees in two
districts in Mashonaland East province collaborated with village health
workers to mobilize expectant mothers to deliver at health facilities
nearest to them, contributing to improving maternal and neonatal
survival.

Other areas where the HCCs have made a difference in
health delivery in their committees include Chikwaka community in
Goromonzi district.

According to Mr Rusike, the HCC in this
community has from 2012 until today taken the lead in mobilizing
financial and material resources – bricks, quarry, river, pit sand and
labour – to construct a maternity waiting home at a primary care
facility in their ward. The developments in these and many other
communities are crystal clear examples of how HCCs are able to organise,
identify local health problems, tap into their own available resources
and take action for community development.

Apart from improved
service delivery, a 2012 Community Working Group on Health assessment on
PHC found HCCs being associated with higher levels of satisfaction with
services, attributed to the communication, improved understanding and
support for morale that they build between communities and health
workers.

“HCCs ensure the proper planning and implementation of
primary health care in coordinated efforts with other relevant sectors.
In doing this, they promote health as an indispensable contribution to
the improvement of the quality of life of every individual, family and
community as part of overall socio-economic development,” indicated the
Community Working Group on Health.

The Community Working Group on
Health has been working with the Ministry of Health to develop and
promote the adoption of training and guidelines for HCCs. The recently
enacted constitution now includes the right to health, which gives
greater leeway to push for legal recognition of HCCs.

While
community participation demands much more than HCCs, institutionalising
and giving a formal mandate to HCCs is critical and key to achieving a
sustainable people-centred health system in Zimbabwe.

Primary health care concerns mount

Primary health care concerns mount

November 27, 2011 

Speaking at CWGH’s 18th national meeting last week, the organisation’s executive director Itai Rusike said there was potential for rebuilding Zimbabwe’s health system from the bottom up.

“Putting in place a national PHC strategy, backed by clear service entitlements, with resources effectively applied to community and primary care levels of the health system could be an entry point to wider PHC oriented changes,” said Rusike.

“And for the communities and local health workers, it’s a matter of common sense to address health where it matters most — as close to the people as possible.”

Rusike noted that health delivery has been undermined by HIV and Aids, poverty and economic decline, social inequalities and political discord.

“As a result, despite stated policy commitments to health, communities have experienced outbreaks of epidemics and falling service quality,” he said. “At independence, the country founded its interventions in the health sector on policies of equity in health and PHC.

“This meant that not only would attention be given to treating illness, but also to promoting health, and ensuring that people do not get ill.”

Parliamentary Portfolio Committee on Health chairperson Blessing Chebundo (pictured) said the participation of communities was vital in improving the country’s health outcomes and systems.

“Despite this, participation is still loosely designed policy wise and hardly evaluated for its contribution to health outcomes,” he said.
He said there are currently 17 pieces of health legislation in Zimbabwe, some of them which have become outdated.

Delegates at the meeting recommended that the country should invest in community health workers for improved health outcomes at grassroots level regarding such issues as immunisation and enforcement of public health law.

Among their recommendations, they called for the production of a simplified booklet to popularise public health law information to communities and vulnerable social groups, for example people living with disabilities.

Delegates also recommended that legislation on access to free public user friendly toilets, particularly for the disabled, should be enforced while privatisation of public services and social amenities should be challenged.

Cancer advocacy budget wins plaudits

Cancer advocacy budget wins plaudits

 Wendy Muperi • 9 January 2014

HARARE - Government has won plaudits for allocating funds for cancer advocacy in the 2014 National Budget.
Itai Rusike, Community Working Group on Health (CWGH) executive director, said the allocation was a positive development.
“A new line item, Cancer Advocacy has been allocated $500 000,” Rusike said in a post-budget analysis, describing it as a positive development in government’s latest financial plan.
Junior Mavu, Cancer Association of Zimbabwe (Caz) general manager, said the country will have to maintain the momentum in the fight against cancer.
“It is a good start for the country,” Mavu said.
“Cancer is killing a lot of people. We however, hope more funds will continue to be availed in the future.”
Finance minister Patrick Chinamasa, in his 2014 budget, allocated $337 million to the Health and Child Care portfolio, and a separate envelope for $500 000 for Cancer Advocacy.
According to the Zimbabwe National Cancer Registry, at least 5 000 people are diagnosed with general cancer every year while cervical cancer accounted for 15 percent of all cancer deaths in 2010.
Despite the ravaging effects of cancer in a country where treatment costs are a top-line ripple for most patients, stakeholders felt the scourge was not being given the attention it deserved.
Mavu said 100 percent decentralisation of services was the best way to curb the disease.
“We applaud government for embarking on decentralising cancer services,” she said.
“We do not want a situation where we celebrate Harare successes while a lot of people in other cities and rural areas are suffering.
“Total decentralisation of testing services will help a lot in early diagnosis and treatment.”
She said the Harare population was responding laudably to cancer screening, evidence that awareness campaigns were being received well.
“Since Caz started screening cervical and prostate cancer in May and July last year respectively, the turn up of people has been very good. Our 10 slots per day are normally fully booked.
“Though the cases testing positive are lesser in percentage than negative ones, they are more than enough to worry the country,” she said.
Cancer causing factors include polluted air, dirty drinking water, alcohol and tobacco.
Chemotherapy costs from $100 and $1 000 per cycle depending on the cancer stage while every patient may need a minimum of six cycles and a maximum of 12. Radiotherapy costs between $3 000 and $4 000.

‘Health centre shortage affects reproductive health’

Pregnant women walk to a health centre in this file photo

‘Health centre shortage affects reproductive health’

June 12, 2015 Shingirai Huni Local News

Gender Reporter
Long distances to health centres continue to be a major impediment to the full enjoyment of Sexual and Reproductive Health Rights by communities in Matabeleland and Midlands provinces.
This was raised by participants at a workshop organised by the Community Working Group on Health (CWGH) in conjunction with Oxfam.
The two-day workshop which was held in Bulawayo recently, was meant to strengthen the capacity of the organisation’s partners in their response to sexual and reproductive health rights issues in communities in which they operate.
Representatives from different HIV/Aids grassroots based organisations and local authorities in Midlands and Matabeleland attended the workshop.
Some of the organisations represented at the workshop include, the Umzingwane Aids Network (UAN), Midlands Aids Caring Organisation (MACO), Hope for a Child in Christ and Youth for Today and Tomorrow (YTT).
“Failure to access sexual and reproductive health services facilities and archaic traditional practices, are some of the major barriers affecting the attainment of sexual and reproductive health rights in our communities.
“In most instances, people in Matabeleland and Midlands regions endure gruelling long distances travelling to health centres” said Nonjabulo Mahlangu (CWGH) Project Team Leader.
Mahlangu said what also clearly emerged from the workshop was that communities lack important information and knowledge on sexual and reproductive health issues.
“There’s clearly limited knowledge among communities on sexual and reproductive health issues. There’s a need to engage all stakeholders including Parliament to raise awareness on the issue” she said.
Mahlangu said her organisation will in future sponsor representatives of the organisations to meet MPs in Harare to discuss challenges they were facing.
She also encouraged the organisations to work closely with the government and local authorities in their programmes.
Most participants at the workshop also bemoaned the shortage of HIV viral load testing machines at government hospitals in Bulawayo.
“I think a lot more needs to be done in the provision of HIV testing machines. The whole of Bulawayo province is being serviced by one machine which is at Mpilo Central Hospital. The machine often breaks down thereby risking the lives of HIV positive people”, said one participant.

Health literacy changes lives in Goromonzi

Health literacy changes lives in Goromonzi

March 5, 2015 in News

HEALTH literacy has helped improve standards of health in the Chikwaka rural area in Goromonzi district where community health workers (CHWs) are playing a leading role in encouraging locals to embrace best health care practices.

By Caiphas Chimhete

As a result of health literacy offered by CHWs such as villages health workers (VHWs), health literacy facilitators (HLFs) and health centre committees (HCCs), community participation in health programmes has also increased in the area.

Even the relationship between the community and staff at Mwanza rural health centre has greatly improved leading to an upsurge of the number of people seeking health services at the clinic.The clinic now attends to between 500 and 650 patients per month up from an average of 350 patients per month two years ago.

Unlike before, pregnant mothers now prefer to give birth at the health centre.

The local community, with the help from the Community Working Group on Health (CWGH), is currently building a waiting mothers’ shelter at the clinic to ensure that pregnant women nearing full term from the catchment can stay at the home while waiting to give birthin a clean and safe environment with aid of a skilled birth attendant.

The Mwanza Clinic waiting mothers’ home, an initiative of the community, is expected to open its doors to pregnant women this year.

Mwanza Clinic nurse-in-charge, Francis Nyakani said home deliveries in the area had significantly gone down as a direct result of intensive sensitisation efforts by CHWs on the importance of giving birth at a health centre. Presently, the clinic handles about 24 deliveries up from average of 15 deliveries per month two years ago.

“There has been a big improvement on health seeking behavior because of sensitisation efforts by community health workers,” said Nyakani. “Most women are now informed about the importance of delivering at a health centre and we give credit to our HCC members.”

He added that people living with HIV/Aids were no longer afraid of revealing their status because the community now treats the disease like any other illness.

“People living with HIV speak openly about their status in this community and they also have forums where they teach others about the importance of things like abstinence and protection,” he said.

Goromonzi is one of the districts where CWGH and Save the Children in partnership with the Ministry of Health and Child Care are implementing the three-year Strengthening Community Participation in Health programme.

The programme, which is being implemented in eight provinces in Zimbabwe, is designed to strengthen community participation in health for improved Maternal, Neonatal and Child Health (MNCH) outcomes by raising community’s awareness about their health entitlements.

“It is now easy to address our problems as a community because we were trained as HCC members starting in 2010 by CWGH,” said Mwanza Clinic HCC chairman Everisto Mupambawatye. “Ican safely say we have successful changed the people’s mindset in the surrounding communities. Pregnant mothers used to shun this clinic preferring to deliver at home but not now. Every pregnant mother is coming here.”

Most members of the community can make salt and sugar solution, they fetch water for drinking from safe sources such as boreholes, they have pit toilets at their homesand they are also aware of the “three delays”.

These are the delay in deciding to seek care, the delay in reaching a health facility and the delay in receiving appropriate care.

“Here pregnant women are registering before three months because we taught them the importance of doing so and we continue to encourage them to follow all the necessary steps until even after birth,” said Anna Takaendesa, chairperson of CWGH in Chikwaka. “Very soon pregnant women will come and wait to delivery in the waiting mothers’ shelter built by the community.”

However, the country’s maternal and child mortality rates remain worrying.

It is estimated that 10 women and 100 children die every day due to largely preventable causes. Health experts say lack of information and awareness on maternal and child also contribute to the deaths.

Mupambawatye said religious objectors still remain an impediment as they discourage pregnant women from seeking medical attention or deliver safely at a health centre.

CWGH executive director Itai Rusike said Goromonzi was one of the districts where the people are enjoying the fruits of community participation in health.He said there was evidence that community-based approaches are effective in improving the health of individuals and communities at large.

“The state of primary health care has greatly improved here as direct result of community participation and health education. People here value their health,” Rusike told a meeting of HCC members at Mwanza Clinic recently.

The concept of community participation is increasingly being recognised as essential for realising the right to health. It entails that communities are no longer inactive recipients of health care but participants in the creation of health care systems that serve their specific needs.

Get your priorities right, govt told

Get your priorities right, govt told

get_prioritiesHealth stakeholders have called on the government to get its priorities right by improving budget allocations towards the health sector, embarking on private public partnerships and plugging leakages within the sector.
The experts said if the government sets its priorities right, citizens’ access to facilities would be improved, thus ensuring quality health service delivery.

The Zimbabwe Medical Association (ZIMA) President, Dr Agnes Mahomva said private public partnerships should be taken seriously as they have been successfully implemented in other countries with better results.
“Government has for some time now misplaced its priorities regarding the provision of health facilities and services. Even workers need to be looked after,” she said.

Zimbabwe has failed to allocate the health sector the 15 percent requirement as espoused by the Abuja Declaration, with the sector getting an average 7 percent.

Community Working Group on Health Executive Director, Mr Itai Rusike said budget allocations to health should be increased.

Health and Child Care Parliamentary Portfolio Committee Chairperson, Dr Ruth Labode believes fraud and mismanagement of funds, wrong and misplaced priorities and leakages could be bleeding the sector.

The constitution of Zimbabwe guarantees the rights to health in Chapter 4 sections 76 and 77 where it states that every citizen and permanent resident of Zimbabwe has the right to have access to basic health-care services.

Every person living with a chronic illness has the right to have access to basic healthcare services for the illness according to the constitution.

 

Monday, 15 February 2016

‘Health board should lobby govt’

'Health board should lobby govt'

HARARE - The Health Services Board (HSB) should convince government of the importance of care workers and ensure that they are fully capacitated, the Community Working Group (CWG) on Health has said.
In an interview with the Daily News last week, CWG’s executive director Itai Rusike said HSB’s impact should be felt when they lobby government.
Minister of Health David Parirenyatwa revealed in Bulawayo recently that an estimated 3 500 nurses were unemployed.
He also noted that with the revised staff establishment, government would absorb all the unemployed nurses with room to employ an additional 5 000.
While world over standard nurse to patient ratio is 1 to 4, in Zimbabwe it is 1:15.
“The recent statistics show a worsening rather than improvement of some key health indicators that directly relate to population health and avoidance of preventable deaths,” he said.
Rusike added that the growth in population and disease burden should necessitate an increase in health workers so as to provide sufficient and quality services.
He said in some instances nurses cannot
undergo further training as their stations will be left empty due to a shortage of staff.
“However, even with the establishment levels, government is still unable to fill in the current establishment. For example most district hospitals do not have four doctors as required in the current establishment system,” Rusike said.
Zimbabwe Nurses Association has said that since most nurses have been unemployed for long periods of time, they need to go for refresher courses.

Helen Kadirire • 16 May 2016

Donor fatigue threatens health sector

Donor fatigue threatens health sector

April 2, 2016 Stan Chiwanga Opinion & Analysis

 

By Tabitha Mutenga, Features and Supplements Editor

David-Parirenyatwa-300x219
Minister of Health David Parirenyatwa

 

THE deepening economic crisis has paralysed the country’s public health sector that had become heavily dependent on donor funding.
Donor assistance, which had, over the years, become the backbone of the country’s health sector, has been drying up as a result of a global recession.
Over the years, Zimbabwe has failed to adequately fund its health sector, leaving external donors to fill the gap.
Instead of setting aside at least 15 percent of its national budget towards healthcare in line with the Abuja Declaration, Zimbabwe has consistently failed to do so for the past 14 years.
Instead, the country has abdicated this responsibility to donors.
Government’s 2015 National Budget amounting to US$4,1 billion allocated US$300 million towards the health sector.
Out of the US$300 million, US$177 million was for employment costs, US$53 million for operations and a paltry US$28 million for capital expenditure.
In the absence of donor funding, the public health system faces collapse since the majority of the country’s key health programmes were dependent on it.
Since 2003, Zimbabwe has been receiving assistance from the Global Fund to fight HIV and Aids, tuberculosis and malaria.
Unfortunately, the programme is expected to end next year.
A donor-driven US$435 million Health Transition Fund, which has transformed the face of the health sector since 2009, is also expected to come to an end in December.
What’s next after donor funding is the biggest question in everyone’s mind?
Countries that have been known to depend on donor funding have almost fallen into absolute poverty after their good Samaritans pulled the plug.
Zimbabwe might find itself in a similar situation.
Ideally, government should fund the majority of its health-related activities with partners bridging the gap.
With the majority of Zimbabweans now failing to afford basic health care services, at a time Treasury is financially crippled to subsidise services, it is high time government comes up with concrete plans to rescue the health delivery system.
Development specialist, Maxwell Saungweme, said Zimbabwe is now a charity case.
“We are indeed a charity case as most of our people cannot afford basics such as health care, education, food and so on. It is a very sad situation arising from bad governance which has seen the collapse of the medical sector and, in particular, reducing us to dependency on drug donations yet we used to produce most of the drugs we needed ourselves.
“The desperate situation with medical funding and drugs is reflective of all other sectors and facets of Zimbabwean life mainly due to bad governance and poor policies over the years,” he said.
Already most district and provincial hospitals are operating below 60 percent because of a shortage of drugs.
Low budget disbursements have also impacted negatively on the operations of major referral hospitals in the country.
Rising debts, outdated equipment, poor funding and maladministration have crippled the operations of hospitals.
For over a decade now, government has failed to provide an efficient and effective basic health care system.
A myriad of factors caused by poor governance and a collapsing economy have manifested themselves in the flight of qualified health practitioners, poor remuneration, insufficient funds for the Ministry to run health programmes, lack of drugs in health institutions and unaffordable health care.
Community Working Group on Health director, Itai Rusike, said it was unfortunate that the bulk of the funding was coming from donors.
“While government policies on essential drugs and on equity in health have significantly widened treatment access in Zimbabwe, there is evidence that drug access has fallen in recent years, and that drug availability is falling, most sharply at the clinic services that form the frontline of the health care system with the community.
“This represents an unfair cost burden on poor communities, but also opens the way for growth of private unregulated drug markets. Drug supplies at rural health centre level are also problematic and are a constant source of client discontent. The approximate 1 000 clinics in Zimbabwe are the last step in a long chain of drug procurement and distribution. Drug supplies that exist at national level are reported to take up to six months to be delivered to district and clinic level,” Rusike said.
Communities have had to spend scarce resources on security services to guard clinics from recurrent theft of drugs and other supplies, given that some of the facilities have no fencing, burglar bars or other forms of security.
“The cost of medications has increased significantly and medical costs have been the highest rising element of the Consumer Price Index for some time,” he added.
newsdesk@fingaz.co.zw

Coping with pregnancy when disabled

Coping with pregnancy when disabled

mapisi

Thandeka Moyo
WHILE motherhood is often celebrated as a positive experience universally, Musa Sibanda, a woman from Bulawayo, was far from being happy on the day she gave birth to her first child.

The woman cut a lonely figure in the maternity ward at Mpilo Central Hospital while other new mothers welcomed their newborn babies with smiles and chuckles.

She had one wish — that the little life in her hands should just die.

Sibanda, who has a speech and hearing impairment, regarded her life as some form of “punishment” from God for nothing seemed to be alright.

Besides her disability, she had tested HIV-positive four years earlier. Wrongly, Sibanda assumed she had transmitted the virus to her baby and was convinced the baby would not make it.

She had flashbacks of the day she took the HIV test and how the post-test counsellor struggled, using rudimentary sign language, to give her tips and advice on living a healthy life despite her HIV status.

The test result was written on a slip for Sibanda to read.

It appeared the counsellor said a lot judging from the movement of her lips complemented, in vain, with hand gestures. But it was the written “message” on the slip that Sibanda finally understood after a lengthy counselling session.

“I was convinced my newborn child was HIV positive since I was also positive,” Sibanda said. “When nurses discharged me, I left Mpilo Central Hospital maternity ward prepared to spend a few years with the little one, suspecting she would die before reaching five.”

Whenever the baby fell sick, Sibanda prepared herself for the worst.

A brave decision to ask a friend who could communicate in sign language to accompany her to the hospital with her daughter paid off.

“After a traumatic four years, I learnt that my daughter was HIV negative,” Sibanda said.

“That day, I learnt of a new concept: the Prevention of Mother To Child Transmission (PMTCT). I was told it was the reason why my child was negative though I was HIV positive.”

While Sibanda’s baby is a healthy normal child, Sibanda had to live for years haunted by the heart-wrenching assumption that her baby was born with the virus. The mother had to wait for years to draw joy from her daughter’s birth.

The good news, it appears, was lost in translation.

With no working knowledge of sign language, staff at the hospital battled to convey the correct message to her at the time of the child’s birth.

Language and communication barriers hinder people with hearing and speech impairment (PWD) especially women who often find themselves stranded when trying to access antenatal care (ANC).

The World Health Organisation (WHO) says the majority of health problems leading to maternal deaths can be prevented, detected and treated by trained health workers during antenatal care visits.

Zimbabwean health workers and professionals are trained in everything else necessary to give quality ANC except Sign Language although the constitution recognises it as one of the country’s official languages.

Chapter 1 subsection 6 (4) of the constitution stipulates that the State must promote and advance the use of all languages used in Zimbabwe, including sign language, and must create conditions for the development of the languages.

“Sign Language is official only on paper. I’ve never come across a nurse who can easily communicate with me. I relied on reading lips during my ANC visits and I know I missed out on a lot of crucial information as the nurses were educating us on safe sex, HIV and Aids, diet, exercise among other topics.

“The reason our health practitioners don’t use Sign Language is the attitude that our government has on PWD. Millions have been used to research on condom use, elections and everything but to date our government hasn’t given us the correct figure of PWD, thus we are as good as non-existent in Zimbabwe,” says Chiedza Phiri from Bulawayo’s Nguboyenja suburb with the assistance of an interpreter.

Bulawayo High Court Judge, Justice Maxwell Takuva, recently ordered the Zimbabwe National Statistics Agency (Zimstat) and the Minister of Finance and Economic Development, Cde Patrick Chinamasa, to release funds to facilitate the full participation of people with disabilities in future population censuses.

Takuva’s judgement followed an application by the Zimbabwe National League for the Blind (ZNLB) suing Zimstat, Minister Chinamasa and his Public Service, Labour and Social Welfare counterpart, Cde Prisca Mupfumira, for allegedly deliberately excluding its members from participating in the 2012 census programme.

Irene Moyo, a wheelchair-bound paraplegic living with HIV, said while her peers suffer due to communication, she experienced discrimination from health workers who seemed to suggest that she should not have children due to her physical disability and HIV status.

“I don’t have a hearing and speech impairment but I met the most discriminatory experience at Mpilo Hospital because of my physical disability. Delivering my third child brought me a lot of trauma,” said Moyo.

Moyo remembers being surrounded by a group of inquisitive and curious midwives who took turns to interrogate her while giving her questioning looks as she sat in her wheelchair.

“I felt like I had committed a sin by falling pregnant while disabled. It was as if PWD have no sexual organs,” Moyo said. “I simply told the nurses that I deserved privacy and that they weren’t special as we were all subjected to the same risks. They slowly walked away accusing me of ingratitude. A disabled pregnant woman is supposed to open up on her sex life in the presence of about 12 nurses and allow them to scrutinize her.”

Moyo says she made up her mind to fight for her rights from that day.

“Up to today I can’t take any discrimination from health personnel who want to dramatise my condition to entertain themselves,” she says.

Community Working Group on Health (CWGH) director, Itai Rusike, says Zimbabwe requires effective communication tools as it moves towards universal healthcare provision.

“Health must have a universal communication strategy so certain sections of our communities aren’t short-changed. We need to closely review our training curriculum and consider the use of sign language, Braille and other languages which are officialised by the Constitution. We need to appreciate the realisation of the right to health enshrined in the constitution. The attitudes we find in hospitals and low morale among practitioners is also a result of poor health financing and prioritisation,” said Rusike.

Dr Bernard Madzima, the director for family health in the Ministry of Health and Child Care, acknowledged the absence of a specific communication strategy for disabled women.

“However, all communication strategies from the Ministry are inclusive as you’ll appreciate that disabilities are wide. Again there’s no discrimination in service provision. However, those with specific needs are accommodated especially those who are difficult to reach because of the nature of the disability.

“Issues of stigma and discrimination can happen. However, the ministry has a programme of training health workers in Disability Awareness aimed at reducing stigma and discrimination.”

Disability HIV & AIDS Trust (DHAT) head of operations Hamida Ismail says women and girls with hearing and speech impairments miss out on information on maternal health due to the communication barrier and low literacy levels.

“While it’s important to train health practitioners on sign language, there’s a need to ensure the sustenance of the language. It’s crucial to understand that sign language is a language, hence the need to practice it on a regular basis after the training,” she said.

Ismail says failing to provide appropriate information perpetuates maternal mortality among women and girls living with disabilities.

April 2, 2016 Stan Chiwanga Opinion & Analysis